Projects

Sustainable care for youth living with T1DM in Rwanda, WDF 20-1740

Sustainable care for youth living with T1DM in Rwanda, WDF 20-1740

WDF20-1740
Building on previous projects to upgrade the quality of T1DM care in Rwanda and enhance the sustainability of results.

Objectives

Provide support to children and youth with T1DM in Rwanda focusing on quality of care/selfcare and digital health for better patient monitoring and follow up.

 

Approach

 

Project activities include two tracks:

 

Diabetes care for T1DM:

  • Specialised diabetes care provided by RDA to all registered children and youth with T1DM in Rwanda, services to be gradually transferred to NCD clinics at district hospitals. Services will include:   
  • Quarterly visits by RDA mobile team to all 40 district hospitals to provide regular diabetes check-up (including screening for complications), diabetes education and distribution of supplies to T1DM children and youth in need.
  • RDA working along-side hospital NCD staff with the purpose of gradual transfer of knowledge, skills and management of the T1DM patients.  
  • Annual summer camps targeting vulnerable T1DM children and youth and caretakers to enhance diabetes self-management and self-esteem.

Quality monitoring and follow up of patients:

  • Monitoring, follow-up and clinical outcomes for T1DM patients will be enhanced through:
  • Establishment of an electronic registry of T1DM patients: transferring the paper-based registry to an electronic version, training of data collectors and continuous, systematic data collection of T1DM patients’ data.
  • Liaison and collaboration with PhD research project using the electronic registry to improve monitoring, follow up and care for T1DM patients (PhD to be funded separately).

 

Expected results

  • Electronic patient registry established
  • 40 NCD clinics at district hospitals strengthened to provide quality T1DM care
  • Three camps for a total of 300 T1DM children and youth and their parents
  • 1500 T1DM patients trained in self-management
  • 900 T1DM patients with regular attendance to clinic (e.g. four times per year)
  • 600 T1DM patients within agreed targets for glucose control
  • At least six meetings with health authorities / policy makers to discuss project outcomes

Project information

Project nr.: 
WDF20-1740
Project Status: 
Ongoing
Interventions and focus areas: 
Primary focus area: 
Region: 
Africa
Country: 
Rwanda
Partners: 
Rwanda Diabetes Associations
Project responsible: 
Director Etienne Uwingabire
Project period: 
2020 to 2024
Project budget: 
USD 230,647
WDF contribution: 
USD 230,647

Expected results

  • Electronic patient registry established
  • 40 NCD clinics at district hospitals strengthened to provide quality T1DM care
  • Three camps for a total of 300 T1DM children and youth and their parents
  • 1500 T1DM patients trained in self-management
  • 900 T1DM patients with regular attendance to clinic (e.g. four times per year)
  • 600 T1DM patients within agreed targets for glucose control
  • At least six meetings with health authorities / policy makers to discuss project outcomes