The aim of the project is to establish comprehensive management of type 1 diabetes in children.
Expected impact
360 doctors trained in the detection and management of type 1 diabetes
60 nurses trained as diabetes educators
150 families of children with type 1 diabetes trained in management of type 1 diabetes at home
375 children with type 1 diabetes and their families will get access to diabetes education
10 million people reached through awareness campaign
Results to date
318 paediatricians from seven cities have been trained in the management of type 1 diabetes.
61 nurses have been trained as diabetes educators.
90 families with children having type 1 diabetes have been trained in diabetes management.
610 children with diabetes have been registered and now receive care.
Treatment guidelines for type 1 diabetes have been revised and are available.
2,168,346 people have been reached through media awareness activities.
An awareness workshop attended by the Ministry of Health has been organised for the local health authorities, families of patients, insurance companies and the media.
Project details
Due to lack of awareness many children with type 1 diabetes in Indonesia die without ever being diagnosed with the disease.
The prevalence of type 1 diabetes in the country is not known. Yet, as the population consists of more than 80 million children - corresponding to 30% of the entire population, the number of children with type 1 diabetes is anticipated to be substantial.
In Indonesia, diabetes has recently begun to receive attention, but most of this attention is given to type 2 diabetes - lifestyle related diabetes. As a consequence, knowledge of type 1 diabetes and its management remains poor both among the general population and the health professionals of the country.
Approach
The initiative is led by the Indonesian Paediatrics Society. In order to complete the various activities, the Indonesian Paediatrics Society will receive support from the Indonesian Society of Endocrinology, the Indonesian Association of Diabetes Educators and the Ministry of Health.
Initially, the guideline for management of type 1 diabetes developed in the year 2000, will be reviewed and updated. At the same time, the team responsible for this revision will also develop new education materials to be used in the education of health professionals, children with type 1 diabetes and their families.
The revised treatment guidelines and the education material developed will be used in training of doctors, nurses and the families of children with type 1 diabetes.
In total, 360 doctors - mainly paediatricians and emergency physicians - will be trained during 3-days training courses held at 7 locations throughout the country. Doctors working at hospitals close to or at government hospitals will be selected for training. The objective of the training is to increase awareness as well as knowledge and clinical skills on the management of type 1 diabetes and thereby ascertain that the capacities of doctors to diagnose and manage the condition are adequate.
In addition to the training of doctors, training of nurses will be organised. During a 2-days training session, 60 nurses will be trained as diabetes educators, enabling them to assist the doctors in delivering education to the patients and their families. The sessions will include specialised training in the principles and practice of teaching and education to successfully empower young people and their families for self-management of the condition.
150 families of children with type 1 diabetes will be invited to attend education sessions seeking to strengthen their confidence in home management of type 1 diabetes and encourage them in the implementation of healthy life styles. The training will also motivate the families to carry out regular activities such as parents' support groups and diabetes camps.
In order for children with type 1 diabetes to experience peer-based and role model support in the management of their condition, diabetes camps will be arranged. The camps will have a 2-days duration and will be held in the Jakarta area. Approximately 100 children with type 1 diabetes will participate in the camps, which apart from supporting and educating the children are also intended to serve as a recreational opportunity for the children.
Finally, in order to raise awareness of type 1 diabetes among stakeholders and the general public, an awareness campaign will be conducted. A mass media campaign, workshops with various stakeholders and special events during the world diabetes day will form part of the campaign. It is envisaged that the campaign will reach an estimated number of 10 million people.
